MEAO's AGM – September 29, 2012
Click on the posters and get all the details
President Letter: July, 2012
MEAO announces its ANNUAL GENERAL MEETING with guest speaker Dr. Byron Hyde
When: Saturday October 1st, 2011 - 1-4pm
Where: Auditorium of Women’s College Hospital, 76 Grenville Street, Toronto
Guest Speaker: Long standing international medical expert on ME/CFS, Dr. Byron Hyde of the Nightingale Research Foundation. “ ... The Nightingale Research Foundation is known internationally for its dedication to research and rigorous medical investigation of M.E. and CFS disabled patients throughout its history ...” The Foundation was conceived by Dr. Byron Hyde in 1988 in Ottawa, and incorporated as a charitable organization in the same year, to explore and understand ME/CFS and fibromyalgia-type illnesses. Dr. Hyde has traveled the world on speaking engagements focusing on the latest research and clinical practices of ME/CFS and has a wealth of knowledge on these illnesses. MEAO is honoured and looks very forward to Dr. Hyde speaking to our association!
All MEAO members and their families are invited to attend.
Latest book by Dr. Byron Hyde “Missed Diagnoses: ME & CFS” Will be available for purchase!
IACFS/ME 10th International Research & Clinical Conference
When: Sept. 22-25, 2011
This September in Ottawa the National ME/FM Action Network is pleased to be hosting an international conference aiming to shape the future of research and clinical practice for ME/CFS, FM and related illnesses.
Vivint Gives Back Contest
The National ME/FM Action Network has a chance to win $100,000 through an online contest that requires daily voting through facebook until August 27th.Click here www.vivint.com/givesbackproject/chari ty/855
The National ME/FM Action Network needs our support! These funds would help cover the costs of the conference in September. They have arranged for students to earn up to 10hrs of community service for their high school graduation requirements if they help by voting each day. Contact email@example.com for more info.
Pacific Fatigue Lab Interview March 16th, 2011
Pacific Fatigue Lab (PFL), in the Department of Sport Sciences at the University of the Pacific.
PFL is a research, clinical and teaching laboratory in Stockton, California. It is focused on the functional aspects of CFS/ME and other fatigue-related disorders.
Staci Stevens is the founder of the PFL. She is the current Vice President of the International Association of Chronic Fatigue Syndrome/ME, which is planning a national conference in Ottawa this September. She is also the developer of the test-retest protocol for CPET (Cardio-Pulmonary Exercise Testing) evaluation for ME patients.
Christopher R. Snell, Ph.D. is a Professor and Chair, Sport Sciences at the University of the Pacific. He is also the chairman of the Chronic Fatigue Syndrome Advisory Committee, which was chartered under the public health services act of the US.
Dr. Alison Bested interview Dec 24, 2010
Dr. Bested covers a broad range of topics including research, advocacy, diagnosis, health reminders and how she got involved with ME in the first place.
Select transcripts will be in January Reaching Out.
Listen to Russell Howe’s Talk to the MEAO AGM
Mr. Russell Howe, LL.B, of Boland Howe law firm, and a longtime MEAO supporter, spoke at our recent Annual General Meeting on the topic of "Tales From the Legal Trenches. More than 70 guests heard his informative talk and a very lively Q & A session followed his talk. Funding for the talk was provided by the City of Toronto and the Ontario Trillium Foundation, with the auditorium donated by Women's College Hospital. Below you will find an audio copy of his talk, along with a PDF file of all of the slides used in his talk. The first PDF file has every slide on a single page, best for viewing on the computer or for printing 38 separate pages. If you wish to print the document, but save paper, click on the second PDF file to show six of his slides per page.
Did You Miss Dr. Stein's Talk on September 15th?"
Dr. Stein is one of North America's leading experts on the psychological aspects of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities. She gave a wonderful talk entitled "Why Chronic Fatigue Syndrome is not a Psychiatric Disease". In the Toronto audience on September 15th, 2010 were 75 patients, therapists and health care providers. The talk was co-sponsored by the MEAO and the Environmental Health Clinic of Women's College Hospital, with funding from the City of Toronto and the Ontario Trillium Foundation. Below you will find an audio copy of her talk, along with a PDF file of all of the slides used in her talk. The first PDF file has every slide on a single page, best for viewing on the computer or for printing 49 separate slides. If you wish to print the document, but save paper, click on the second PDF file to show six of her slides per page.
We thank Dr. Stein for travelling from Calgary to deliver her presentation to us.
MEAO President and Dr. Bested on “Health on the Line, a Phone-in live Television show”
On Monday, August 23rd, from 2-3 p.m. Dr. Alison Bested and Jeanne Samonas, President of the MEAO, were guests on the television show “Health on the Line” on CTS television stations across Ontario. The topic was ME/FM/MCS: Problems with Access to Medical Care. This was a live call-in show and there were great questions from the host as well as the television audience. The video was carried on CTS after the event but has since been archived and is unavailable. "Health on the Line has covered the topic of Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities before and we hope the success of this show will lead to future programs. The MEAO will post all upcoming shows on our website.
Dr. David Bell Presented to a Capacity Audience at MEAO's March 6th Event
The MEAO would like to thank Dr. David Bell for his exciting presentation on the latest in XMRV information and to Dr. Alison Bested and Dr. Bell for leading an exciting hour of Questions and Answers about all the latest information on ME/CFS. We packed Women's College Hospital Auditorium with 150 participants. Make sure you become a member so you can find out about our upcoming talks and receive our quarterly newsletters and regular email updates.
MEAO Community Seminar and Interview with lawyer Hugh Scher:
"What Everybody with ME/FM Needs to Know About their Legal Rights".
"In the Fall 2009 Reaching Out Newsletter of the M.E. Association of Ontario, we carried an interview with lawyer Hugh Scher. Hugh answered a number of questions about dealing with workplace and insurance claims when you are disabled with Myalgic Encephalomyelitis or Fibromyalgia. Then on November 7th, the MEAO sponsored a free Community Seminar entitled "What Everybody with ME/FM Needs to Know About their Legal Rights". More than 75 people attended and the MEAO summarized Hugh's talk in our Winter 2009 newsletter. If you are not already a member, we encourage you to take out a membership and ask us to send you these two exciting newsletters."
News from the Calgary M.E./CFS Conference
Canada held its first national conference on M.E. in the fall of 2008 and the MEAO was there. Here's a short introduction on our participation and there are links to 10 different presentations from that conference so you can read about the latest in medical information, coping with M.E., legal issues and more.
The MEAO would like to congratulate Dr. Eleanor Stein and her team for the excellent work in putting together the M.E. Medical Training workshops on M.E. and arranging the conference on Fatigue and M.E. Maureen MacQuarrie and Christiane Garcia both attended on behalf of The M.E. Association of Ontario and have come back from the conference greatly energized and enthused by the potential for national collaboration and networking for both research and for awareness about M.E./CFS. Maureen reported back that "It was a great opportunity for us as MEAO representatives to meet others from across Canada and from the States - patients, doctors and researchers and to share ideas!" The Public Lecture was the largest gathering devoted to ME/CFS in Canada - at least 250 people were in attendance. The M.E. sessions were complemented by a Research Symposium on Fatiguing Illnesses which was attended by a cross-section of researchers from a range of disciplines.
There are many podcasts from the workshops which are available online (free of charge) at the University of Calgary Medical School's website. Click here to access the podcast.